Contents
Kernicterus
Overview
Kernicterus is brain injury caused by extremely high bilirubin levels in newborns. While the acute phase happens in infancy, many people live into adulthood with lasting effects—movement disorders, hearing loss, speech and swallowing difficulties, chronic pain and fatigue. Those challenges can change with age and benefit from periodic reassessment and targeted rehabilitation.
At The Royal Buckinghamshire Hospital, Aylesbury we support adults living with kernicterus‑related disabilities. You’ll receive consultant‑led neurological assessment, rapid access to blood tests and CT imaging, and a multidisciplinary rehabilitation plan. (We do not provide neonatal or paediatric treatment, but we will signpost families to specialist children’s services when needed.)
Why Ongoing Adult Care Matters
- Symptoms such as dystonia, choreoathetoid movements and spasticity can worsen with fatigue, stress or ageing joints
- Long‑standing swallowing or breathing issues increase pneumonia and nutrition risks if unreviewed
- Hearing loss may progress, affecting safety, work and relationships
- Chronic pain, contractures and scoliosis can develop from abnormal posture and tone
- Reduced mobility raises cardiometabolic and stroke risk—screening and lifestyle support are essential
Common Adult Symptoms And Challenges
- Involuntary writhing or twisting movements (choreoathetosis), dystonia or spasticity
- Gait instability, balance problems and frequent trips or falls
- Dysarthria (slurred or tight speech) and swallowing difficulty with choking episodes
- Sensorineural hearing loss, auditory neuropathy or sound sensitivity
- Dental enamel defects, jaw tightness and chewing fatigue
- Chronic musculoskeletal pain, cramps and joint stiffness
- Fatigue, sleep problems, anxiety or low mood linked to long‑term disability
When To Seek Medical Advice
Call 01296 678 800 if you:
- Notice worsening movement control, increasing falls or new pain
- Struggle with eating, drinking or frequent chest infections from aspiration
- Need updated hearing tests, communication aids or workplace adjustments
- Want a fresh rehabilitation plan to maintain independence, drive, or return to study/work
Dial 999 for sudden facial droop, limb weakness or speech loss—possible stroke symptoms.
How We Assess And Monitor At Royal Bucks
- Consultant Neurology Assessment – detailed history, functional goals and focused movement/cranial‑nerve examination in our Neurology Service.
- Rapid Laboratory Testing – metabolic and nutritional profiles via our Blood‑Testing Service, typically back within 24 hours.
- On‑Site CT Brain/Spine – imaging in the CT Suite for new headaches, pain or injury; MRI arranged at our sister site when finer detail is required.
- Hearing and Vision Pathways – swift referral to audiology and ophthalmology partners for reassessment and device optimisation.
- Regular Review Schedule – usually every 6–12 months, or more frequently during intensive therapy or medication changes.
Why Choose The Royal Buckinghamshire Hospital?
- Consultant‑delivered clinics with appointments usually within one week
- Integrated diagnostics (bloods, CT) and rehabilitation on one site
- Experienced multidisciplinary neuro‑rehab team focused on adults
- Clear referral routes to specialist audiology, dentistry and orthopaedics
- Private ensuite rooms, free parking and convenient access from Oxford, Milton Keynes and London
Frequently Asked Questions
Do You Treat Children With Kernicterus?
No—our services are for adults. We can guide families toward paediatric centres for infant or child care.
Can Movement Problems Improve After Years?
Yes. Neuroplasticity persists. Targeted therapy, botulinum injections and updated equipment can significantly improve function and comfort.
Is Surgery Ever Needed?
Occasionally, orthopaedic procedures or intrathecal baclofen pumps are considered. We coordinate referrals to regional surgical teams and provide pre‑ and post‑operative rehab.
Take The Next Step
Call 01296 678 800 or enquire online to arrange an adult kernicterus review and personalised rehabilitation plan.
23 July 2025